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Bu sayfa, 26. Dünya Psikiyatri Kongresi'nde sunulan çalışmanın yapay zekâ desteğiyle hazırlanmış Türkçe özetidir. Çalışmanın sahibi sunan yazarlardır; atıf için orijinal kaynağa başvurun.

SO391

How can we best support adolescents and young adults with cancer and their family caregivers? A qualitative study of support preferences

HOW CAN WE BEST SUPPORT ADOLESCENTS AND YOUNG ADULTS WITH CANCER AND FAMILY CAREGIVERS? A QUALITATIVE STUDY ON THEIR SUPPORT PREFERENCES

Most adolescents and young adults with cancer and their caregivers report a need for group-based psychological support in the early stages of the cancer journey.

The study aimed to explore the intervention needs and support preferences of adolescents and young adults (AYAs) with cancer and their family caregivers. Participants were recruited in person and online through 4 hospitals and 1 association in Portugal. Semi-structured interviews were conducted online, and the data were evaluated using thematic analysis. The sample consisted of 17 adolescents and young adults and 14 caregivers; 58.8% of the adolescents and young adults were female, their mean age at recruitment was 23.8 years, their mean age at diagnosis was 19.8 years, 58.8% had hematological cancer, and 70.6% had completed treatment; 71.4% of caregivers were female, and their mean age was 50.6 years. Areas requiring additional support were identified as healthcare support and health literacy (4 young people, 3 caregivers), a healthy lifestyle (4 young people), education (4 young people, 1 caregiver), social support (4 young people, 6 caregivers), peer support (3 young people, 5 caregivers), and psychological support (11 young people, 9 caregivers). During diagnosis and treatment, young people wanted to discuss their emotions, fears, insecurities, self-esteem and body image, romantic relationships, and sexuality; caregivers prioritized expressing their emotions, managing emotions, and coping with the diagnosis. After treatment, young people emphasized hope and re-engagement in social life, while caregivers emphasized change and adjustment. An individual format was preferred when greater privacy was desired, whereas a group format was preferred when participants wanted to gain new perspectives and feel less alone. The findings indicate that the direct involvement of the target group in developing interventions and policies is essential for creating support models that meet their needs.

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